Who We Are
The John Thomas NKH Foundation is a 501(c)(3) charitable, public foundation. We were founded in 2012 and are based just west of St. Louis. Our goal is to help families affected by the NKH disease as well as help fund research that hopefully will lead to a cure for this horrible disease.
Golf Classic Set for April 30, 2021, Bear Creek Golf Club
The annual John Thomas NKH Foundation Golf Classic has been scheduled for April 30, 2021. The decision was made to hold the tournament in the Spring of 2021 in consideration of the safety of all our incredible supporters as we make our way through the current health pandemic.
Want to get involved? You can volunteer for events, sponsor events, make donations or just participate in our events! Contact us if you'd like to help out!
Each year we hold the annual John Thomas NKH Golf Classic. This year's event takes place at Bear Creek Golf Club in Wentzville, MO on April 30, 2021!
Make a Donation
Every little bit helps. Please donate to the John Thomas NKH Foundation.
Our mission is to help families affected by the NKH disease as well as fund research in hopes of finding a cure.
The John Thomas NKH Foundation is proud to partner with Cardinal Glennon Children's Foundation. Each year we donate thousands to help meet the needs of children and families affected by NKH.
As of July, 2020, the John Thomas NKH Foundation has entered into a 5 year agreement with the University of Notre Dame in order to support gene therapy research of the NKH disease.